OMG :(
Ok where do I start. Want to say I know I know blog hasn't really been getting updated but, have a very good reason the reason not a good reason but, here goes. My daughter Nesa which most of you all know that has a liver diease been in the hospital since March 17th just got out today the 26. So mainly I have been there taking care of my daughter and so trying not to worry as much but, that is hard to do when you see your child is sick.
Where do I start at. Well daughter went to school on the 17th then she came home complaining about her stomach hurt due to Nesa haven't a liver diease it is sometime hard for me to know if it is a hungry feeling or for her to have to do a number two kind of a feeling but, after touching her stomach she yelled and scream so I knew it was more then that. Took her to the hospital and they ran tests like a CT scan took blood work and a ultrasound and found out that well she always had a enlarger liver and a enlarger spleen but, now she has two enlarger kidneys grrrrr if it aint one thing there is another. After the doctor told me that I just couldn't belive this. Her doctor was asking Nesa did she fall on her belly or get hit in her belly then Nesa confused that some little girl at school kicked her in her belly. Now that was what cause the pain that kick caused all that damage mainly to her kidneys and also made her liver backup with bile. Nesa told me she told the teacher the teacher just mainly told the little girl to stop kicking and that was it.
One thing I was most mad at is that the "DAMN" teacher didn't tell me a "DAMN" thing that is the most part that I hated. Her teacher, the nurse at the school they all know about Nesa's condition. Due to her liver diease she isn't to be kicked, punch or fall on her belly they all know that she can't even play doing gym if they is outside. So that is what pissed me off the most. I know I know the little girl is only 6 but, omg this has really pissed me off. Now my daughter has more things wrong with her then before.
So we spent all this time in the hospital Nesa couldn't even enjoy Easter so she had a little nice Easter with my family in the hospital.
Nellie came to see her big sister on Easter in her Easter outfit. :) Awww look at them smile.
My niece just had to see her big cousin. :) awww look at them both cute. If you look more closely you will see my niece have on a shrug I made.
There go Nesa again. Awww happy
Nesa and my niece again.
After so many days of seeing Nesa unhappy and in pain was happy that she started to become herself again. :)
So now I will be busy for a while with other appointments for Nesa she has a Endoscopy (EGD) procedure on April 1st. (EGD) procedure that allows the doctor to see the inside of the esophagus, stomach and small intestine. It's done with a soft flexible tude that is passed down the mouth to the stomach. The doctor can look in the lining of the esophagus, stomach and duodenum on a TV monitor. Of course she will be sleep the whole time.
Then on April 7th she has to have a liver biospy where they cut her just a little while she is sleep and take a piece of her liver to look at it under a microscope.
They isn't to much worry about her kidneys because her urine is ok but, they is keeping a close eye on that. They is also thinking about removing her spleen all together because now her spleen is now bigger then her liver.
Then we have to go from there to see what is next. Liver transplant may be what will be next. So everyone keep Nesa in your prayers.
Not much crocheting and sewing. For those that has kids you all will understand when you have a sick child how can you pick up your hook and enjoy it.
So wanted to update you all real quick. My Swap Swap Gals blog will be still going on will hopeful list the next swap voting up soon hopefully today. To get everyone ready for next month.
Sorry Christina haven't been able to do the swap email/ecard but, I guess after reading my blog you now know why.
Keep Nesa in your prayers hoping all goes well.
Also thanks for stopping by.
Will tryong to get to my blogger friends blogs soon to caught up on what everyone is doing. :)Take care everyone.
Where do I start at. Well daughter went to school on the 17th then she came home complaining about her stomach hurt due to Nesa haven't a liver diease it is sometime hard for me to know if it is a hungry feeling or for her to have to do a number two kind of a feeling but, after touching her stomach she yelled and scream so I knew it was more then that. Took her to the hospital and they ran tests like a CT scan took blood work and a ultrasound and found out that well she always had a enlarger liver and a enlarger spleen but, now she has two enlarger kidneys grrrrr if it aint one thing there is another. After the doctor told me that I just couldn't belive this. Her doctor was asking Nesa did she fall on her belly or get hit in her belly then Nesa confused that some little girl at school kicked her in her belly. Now that was what cause the pain that kick caused all that damage mainly to her kidneys and also made her liver backup with bile. Nesa told me she told the teacher the teacher just mainly told the little girl to stop kicking and that was it.
One thing I was most mad at is that the "DAMN" teacher didn't tell me a "DAMN" thing that is the most part that I hated. Her teacher, the nurse at the school they all know about Nesa's condition. Due to her liver diease she isn't to be kicked, punch or fall on her belly they all know that she can't even play doing gym if they is outside. So that is what pissed me off the most. I know I know the little girl is only 6 but, omg this has really pissed me off. Now my daughter has more things wrong with her then before.
So we spent all this time in the hospital Nesa couldn't even enjoy Easter so she had a little nice Easter with my family in the hospital.
Nellie came to see her big sister on Easter in her Easter outfit. :) Awww look at them smile.
My niece just had to see her big cousin. :) awww look at them both cute. If you look more closely you will see my niece have on a shrug I made.
There go Nesa again. Awww happy
Nesa and my niece again.
After so many days of seeing Nesa unhappy and in pain was happy that she started to become herself again. :)
So now I will be busy for a while with other appointments for Nesa she has a Endoscopy (EGD) procedure on April 1st. (EGD) procedure that allows the doctor to see the inside of the esophagus, stomach and small intestine. It's done with a soft flexible tude that is passed down the mouth to the stomach. The doctor can look in the lining of the esophagus, stomach and duodenum on a TV monitor. Of course she will be sleep the whole time.
Then on April 7th she has to have a liver biospy where they cut her just a little while she is sleep and take a piece of her liver to look at it under a microscope.
They isn't to much worry about her kidneys because her urine is ok but, they is keeping a close eye on that. They is also thinking about removing her spleen all together because now her spleen is now bigger then her liver.
Then we have to go from there to see what is next. Liver transplant may be what will be next. So everyone keep Nesa in your prayers.
Not much crocheting and sewing. For those that has kids you all will understand when you have a sick child how can you pick up your hook and enjoy it.
So wanted to update you all real quick. My Swap Swap Gals blog will be still going on will hopeful list the next swap voting up soon hopefully today. To get everyone ready for next month.
Sorry Christina haven't been able to do the swap email/ecard but, I guess after reading my blog you now know why.
Keep Nesa in your prayers hoping all goes well.
Also thanks for stopping by.
Will tryong to get to my blogger friends blogs soon to caught up on what everyone is doing. :)Take care everyone.
Comments
Post a Comment