It's Been A Long Time Coming
Ok I've been on a totally emotionally roader coaster for weeks now. Not to many of you known about my daughter Nesa and her condition a quick sums up on Nesa. Nesa was born with a liver disease called Biliary Atresia to get more information you can click. But, Nesa had a surgery called a Kasai back when she was only a month old to correct her bile ducts. Ok that did great but, for many years she kept getting a infection due to her liver disease. She was hospitalize many many times I lost track a long time ago. But, her GI dr did endoscopy produce to help close up her veins that went down thou her month and down towards her stomach. This was done ever 2 to 3 months for the pass 3 years in a half this was to help open up her veins a little so that they want open to much or close to much closing can cause blood clots and opening way to much can cause her to bleed to death. Now that was going soso but, then Nesa started coming down with this horrible cough this summer that just wouldn...